I have MG and it has been so severe at times that I couldn't walk, talk or eat. I almost died from it last year. What I have is a simple (though buried under some very complex biochemistry) electrochemical disorder - as do we all who suffer from MG. Not for one moment, though, have I ever considered myself "ill." Ill is where someone needs to stay at home in bed or be in the hospital.
My symptoms have been far worse than a great many of the people in the forum (an English on-line forum for MG victims) and I still don't consider myself "ill," and never wiil (at least not with MG). The condition has not caused me time off from work from my stressful job, even when I couldn't talk (I used e-mail for communication). When I couldn't eat, I drank protein shakes (and lost 50 pounds from malnourishment). And, when I couldn't walk, I took a bus.
I'll I'm not.
Regards and best wishes for the future!
Curt
Thursday, April 05, 2007
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